Evan is recovering nicely from his recent illness, which I'm thinking was viral. Zach ran a temp between 102 and 103.5 all weekend, and although it broke Sunday morning and has not returned, his inbility to tell me what hurts had me taking him to our family doc yesterday to be sure all is well. Yay for Zach! Everything checked out fine, so it was either viral or was caused by teething. (Nope, no teeth yet). While there, with a doctor I work with repeatedly in the ICU's, we went over Zach's milestones again. He's so hard to gauge because I compare him to Evan, who did everything at the speed of light, except for speaking. And I have tried to be laid-back about the whole thing: Zach will do whatever when he's ready to do it.
The moral of the story is that the doctor is worried not about Zach's fine or gross motor development--those have a way of catching themelves up and any mild slowness has mostly been the result of prematurity or simply from baby chunk and resolves itself. But he was worried about the sensory stuff: that Zach still, at 9 months, gags on anything thicker than nectar-thick (the consistency of pudding is too thick for Zachy!), that he isn't babbling mamama/ dadada/ bababa yet. And so the first step is an appointment with an audiologist at my hospital to ensure that there is no hearing impairment. I should mention here that we don't think there is at all, but since it is the number one source of this sort of delay, it has to be ruled out. I can tell you that his newborn hearing screen was perfect, as was the more indepth one they did because he was premature. He has never had problems tracking us by the location of our voices. When we speak to him, he looks and smiles. We are both sure that his hearing is fine. It is more of formality than anything. Something we have to rule out in order to go to the next step.
So what is the next step from there? Well it could be one of two things. Given that Zach has always had green nasal drainage from birth, it is entirely possible, according to our doctor, that there is a pocket of fluid in his ears. It also is unlikely because he has never had a single ear infection, and usually babies with drainage problems will have fequent ear infections. We are really hoping this isn't the case with Zach because it will mean he will need tubes in his ears. Surgery. I don't even want to think about it.
So after both of these are ruled out, Zach will be seeing a developmental specialist at Cincinnati Children's Hospital Medical Center. I have mixed feelings about this. I hate that he has to even go there. This is where the overzealous doctor made the false allegation with Ben, for starters. It is also where Ben was treated by the team of pediatric cardiologists, and thus holds some very painful memories for me. And that place is terribly depressing. Nothing will make you appreciate your healthy children like a stroll through that place,where you are liable to see anyone from newborns to teens with these horrifying medical conditions. And then on the other hand, there is relief. Because while you never want to need them, you feel absolutely grateful that there is a facility a stone's throw from home that breaks ground daily in just about any treatment for children imaginable. They even work in collaboration with Good Sam to do surgery in utero if need be (Yes, it's called The Fetal Surgery Center of Cincinnati or something like that). (Good Sam is the OB Mecca I griped about while on bedrest if you followed my pregnancy blog. Gah! I hated going to that place!) If there is something wrong with Zach or he needs any sort of treatment or therapy, I can trust them not only to find it, but to be completely competent at treating him. And that is about the only ray of sunshine in this whole Godforsaken mess.
Because I cannot get it out of my head that this is my fault. That I should've lied about my contractions while pregnant. Because if I would have done that, there would have been no home uterine monitor. And thus no trips to the hospital. And no drugs. And no early c-section. But my God, the drugs...3 months of the Brethine pump, plus the oral form I took before the pump and the subcutaneous injections I got each time they sent me to the damned hospital. The mag sulfate--evil, evil mag sulfate. The indomethacin. The steroids to speed him up in there. The damned pain meds it took to get me through that last month, which my OB assured me were safe. And the progesterone shots. I keep wondering which one it was, knowing full and well that it is likely none of them that did this. Which brings it back to me. Which takes me back to those last months of my pregnancy and makes me contemplate whether I could've held on longer. It's so easy to speak of this now when I have had nine months with my angel and am free from that pain. But then? If I put myself back in that place, I think I can honestly say that I did the best I could. Me and my uterus of which medical mysteries are made. I have to be nicer to myself about this. I was in an active labor pattern for months--literally--and I effing functioned like that. Yes, I did the best I could. And while I am not trying to stroke my own ego here, I think I would be hard-pressed to find many others who could've endured that for as long as I did. But still...
And John's reaction! Argh! Since he dropped Zach and I off for the appointment that was supposed to be a routine check and ran errands with Ev, I had to explain all of this to him. And his response to all of this still infuriates me: " ARE YOU TELLING MY SON IS GOING TO BE RIDING THE SHORT BUS TO SCHOOL??????" Seriously. And then: "We'll have to get a 'Slow Children Playing' sign for the yard just for Zach." I know he was just trying to make me laugh, but still. I could've killed him, I swear. Completely unhelpful and inappropriate, John.
So anyway...
I have to wait. I have to hope all is well, or that his delays are so mild that minimal therapy will fix it all. I still hate that we are in this place.
The ball starts rolling on February 28th, when Zach sees the audiologist...
Who says you cannot have it all? This is my crazy life as a wife, mother,healthcare professional, perpetual student, conservative yet feminist Keeper of the Crayons.
(If you don't like the music, scroll down and you can control it on the right side. But I like it, so there! )
Showing posts with label developmental delays. Show all posts
Showing posts with label developmental delays. Show all posts
Tuesday, February 22, 2011
Friday, January 14, 2011
8 Months and a Nagging Feeling
Yesterday, Zach turned 8 Months Old. I couldn't blog because I was out and about town. Upon returning home, John and I watched The Social Network, which I had been wanting to see. All of this served as a good way to stall the 8 Months post, which is great, since I have dreaded saying what I am about to say.
I'm worried about Zach. I really am. He is doing nothing new this month. He still just scoots instead of actual crawling. He's gotten better at it. He's quicker, and I can tell he's stronger by the way he reaches and turns. He'll get almost up to where he is on one leg, with the other three appendages up in te air trying to get stuff that has caught his interest. He'll sit unsupported for a couple of minutes before he suddenly faceplants or flops backward, which means I have to worry about him getting hurt and so I always just lay him on his back to play unless I am sitting right there. We aren't making any consonant sounds when we babble. He still has no teeth.
So what is he doing? Well, he's doing everything a little better and more purposefully. When we are out of his sight, he looks for us. The same with toys, which tells me he understands object permanence. When playing with him on the floor, he'll pull you toward him and put his mouth on your face to give a kiss. He's taking solids better. He'll finally hold his own bottle, though we still cuddle with him at feedings. He's very very social and can command the attention of an entire room of people. Yesterday, we were at lunch when his smiles, giggles, squeals and coos had strangers in the restaurant coming up to our table to comment on his cuteness. He can do the whole pincer grasp thing now. And he wants to play. He loves clapping hands. One day, I was trying to teach him to clap his hands by taking his hands with mine and clapping them for him. Instead he learned how to clap my hands and so now he will grab my hands with his and clap them for me. He's still a chubster. He's engaging and happy. He watches everything like a hawk and you can just see him learning!
But the things he isn't doing yet just grabs my attention and induces worry. I keep reminding myself of his prematurity in an effort to quiet the nagging feeling. I'm sure this has a little to do with some of it, as does the fact that every baby is different and that babies don't develop uniformly. They may mature by leaps and bounds in the cognitive arena one month then turn and make strides in the motor skill area the next month. Evan did all of the motor stuff way early and by the time he was a year old, we already had him in a toddler bed because he had learned to escape his crib and I was worried the leap to the floor would hurt him. But then he talked really late, prompting us to hae him evaluated by a developmental interventionalist. Turns out all was fine and when he did finally speak, instead of monosyllable babble, it was in clear and complex sentences. I'm hoping Zach will be the same and will do everything in his own time.
So for now, the plan is to watch and see what happens this month. He goes for another well-child appointment next month, and if I am still so worried, I'll discuss it with the doc and get a referral to have him evaluated. In the meantime, I will stew over every dose of every medication they gave me while I was pregnant and I'll worry about every day that we could have kept him in there and didn't. And I will fret that this is all my fault and if I would have just lied about the contractions, all would be fine right now...
I'm worried about Zach. I really am. He is doing nothing new this month. He still just scoots instead of actual crawling. He's gotten better at it. He's quicker, and I can tell he's stronger by the way he reaches and turns. He'll get almost up to where he is on one leg, with the other three appendages up in te air trying to get stuff that has caught his interest. He'll sit unsupported for a couple of minutes before he suddenly faceplants or flops backward, which means I have to worry about him getting hurt and so I always just lay him on his back to play unless I am sitting right there. We aren't making any consonant sounds when we babble. He still has no teeth.
So what is he doing? Well, he's doing everything a little better and more purposefully. When we are out of his sight, he looks for us. The same with toys, which tells me he understands object permanence. When playing with him on the floor, he'll pull you toward him and put his mouth on your face to give a kiss. He's taking solids better. He'll finally hold his own bottle, though we still cuddle with him at feedings. He's very very social and can command the attention of an entire room of people. Yesterday, we were at lunch when his smiles, giggles, squeals and coos had strangers in the restaurant coming up to our table to comment on his cuteness. He can do the whole pincer grasp thing now. And he wants to play. He loves clapping hands. One day, I was trying to teach him to clap his hands by taking his hands with mine and clapping them for him. Instead he learned how to clap my hands and so now he will grab my hands with his and clap them for me. He's still a chubster. He's engaging and happy. He watches everything like a hawk and you can just see him learning!
But the things he isn't doing yet just grabs my attention and induces worry. I keep reminding myself of his prematurity in an effort to quiet the nagging feeling. I'm sure this has a little to do with some of it, as does the fact that every baby is different and that babies don't develop uniformly. They may mature by leaps and bounds in the cognitive arena one month then turn and make strides in the motor skill area the next month. Evan did all of the motor stuff way early and by the time he was a year old, we already had him in a toddler bed because he had learned to escape his crib and I was worried the leap to the floor would hurt him. But then he talked really late, prompting us to hae him evaluated by a developmental interventionalist. Turns out all was fine and when he did finally speak, instead of monosyllable babble, it was in clear and complex sentences. I'm hoping Zach will be the same and will do everything in his own time.
So for now, the plan is to watch and see what happens this month. He goes for another well-child appointment next month, and if I am still so worried, I'll discuss it with the doc and get a referral to have him evaluated. In the meantime, I will stew over every dose of every medication they gave me while I was pregnant and I'll worry about every day that we could have kept him in there and didn't. And I will fret that this is all my fault and if I would have just lied about the contractions, all would be fine right now...
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